Em has been on her regular dose of the extended release med. as usual with a supplemental smaller dose to be given as needed later in the day if she has a dance class or something else going on that night. Well, she has been taking the supplemental dose everyday for most of the summer due to her theatre class. Yesterday and the day before were the first time for 2 days in a row that she hasn't had that 2nd dose. Needless to say, last night was the night from hell. She was so out of control that she couldn't calm herself down. She was moody, shaky, impulsive beyond her normal impulsive self, and downright crazy. This happened one other time over a year ago when her doctor wanted to see what would happen if we took her off her meds. for awhile too. The same thing happened only it was about 3 times worse. Thank goodness I had some of her meds. left over. She was off of them for a total of 3 days and was having panic attacks and was completely out of control. She cried for hours and begged to go back on her meds. She almost became violent which is NOT Emma. With the doctors consent I started her back on them. At least this time it was only her supplemental med. that I had her stop taking.
Today she is nice and calm so I know the "withdrawal" phase is over. I hate having her on meds. I really do. But, I know that if she doesn't take them she feels overwhelmed and can't get things done. She can't concentrate on one thing for more than a few minutes and is constantly on the move.
I can't even imagine how it feels to have your mind so out of control that nothing makes sense and you can't stop yourself from moving, moving, moving. She's tried to describe it to me but there really aren't words to describe it.
Em's level of ADHD is very significant. Put it this way--there are yes and no questions that you have to mark off about your child when they are first diagnosed. I had to answer yes to all of them but one. Yup. That's my girl. Her doctor has only seen a few other kids with this degree of ADHD.
No one really knows why ADHD has so many levels or what even causes it. They do know that it runs in families.
Em is going to have quite a few challenges ahead of her for a lot of years yet. Will it get better? Maybe. Will she eventually be able to go off of her meds. when she is older? Possibly. One can only hope. At least she doesn't see it as a disability. She sees it as a gift. It makes her more creative and intuitive which is cool.
She starts a new school in a few weeks. I hope they are as attune to her needs as her elementary school was. They had a sound system for her severe hearing loss which Holmes doesn't have so hopefully they will provide one so she can continue to do well.
I hope she continues to have her "can do" attitude. I truly believe that is why she does so well and doesn't let anything stand in her way. :)